Camden had his 12 week visit to his surgeon this week. Dr. Bambini was very pleased with his lung sounds and the look of his incisions. They are healing very nicely and have flattened out a good bit. He said the discoloration would lighten up more as time goes by. Camden is still winded after running or doing vigorous activity, but the Dr. said that was actually a good thing. He wants us to encourage more activity. The more he runs and plays, the more alveoli will be reproduced where the lobe of lung was removed. So we want to build up more lung capacity.
The final diagnosis was that he was most likely born with a congenital cyst on his lung that is called a CCAM. At some point in his life he developed a severe infection or pneumonia. This caused his lungs to adhere together and have some damage to them. But by removing the lobe of the lung with the cysts and damage, he should have no further issues or problems. Everything has now been taken care of. In most cases in the US, this would have been removed soon after birth and he would not have had complications from the CCAM. But because he is young, he should be able to build up the lung capacity in the area that was removed. He doesn’t go back till December for a chest x-ray to see what things look like a year after surgery! This is an answer to prayer.
A few weeks ago, Aliana had a pre screening for speech therapy from our county’s early intervention program. We weren’t surprised to find out that she has a pretty significant delay in articulation. She has a lot of words, but just trouble pronouncing them clearly. We WERE surprised when she failed the hearing test in one ear at the end of the testing.
After following up with our wonderful ENT, we found out that Aliana had some type of blockage in her right ear and she did in fact have complete hearing loss in that ear. The doctor tried unsuccessfully to remove it during our visit. He really thought it was hardened wax, but after working for a good while just couldn’t get it out. So she was scheduled for outpatient surgery to have it removed and for a complete hearing test or ABR while she was under anesthesia. We had that done very early this morning.
Sometimes being an adoptive mother brings very frustrating circumstances that you can do nothing about. And it makes you angry and after you rant and rave and cry, you have to realize that you have no control over your child’s past. Today was one of those days.
Apparently, soon after Aliana’s birth, something was put into her ear. The doctor compared it to toilet paper or something very similar. It was pushed all the way into her ear canal almost to her ear drum. Of course he couldn’t tell us why, he could only speculate and wonder along with us. But he said it had been there most of her life. Then wax had built up around it and on top of it until it had hardened like a rock. When he got it all out, underneath the hardened part, was the mushy paper stuff. He said because of how impacted her ear canal was, she had never been able to hear out of that ear.
I can’t imagine what that must have felt like. And I am frustrated that she has had that for almost three years and we didn’t know!!
But, I guess I have to come to the conclusion that it’s out now and from this point on, things will feel a lot different. And sound a lot different. And like the doctor said, her life will completely be changed.
I have been missing the last few weeks from my blog. Yes, I have been extra busy, but the real reason is that I was having blog issues. I reached my maximum capacity and was not able to post any more pictures without making some decisions. My wonderful nephew, Derek, who designs websites as a side job, agreed to help me set up a new blog and host it for me. Unfortunately, life has gotten so busy that I just don’t have the time to get it all fixed right now. So I am putting it on the back burner and hoping to get a chance to do it later this year. I did a temporary fix for now and hopefully it will work.
Sooo, I am going to try to catch up over the next few days because there is a lot going on around here. Of course, when is there not a lot going on around here????
I don’t post about my big boys very much these days. They are busy busy and they don’t slow down much for pictures. But they are here and very much a part of this family and loved and growing way too fast.
Recently my sweet sister in law captured some pictures of them that I absolutely love and I had to share. They are growing quickly into young men and leaving the little boys behind. I love who they are becoming, but I will miss who they were.